Objective: to understand the challenges faced by family caregivers of children and adolescents with Epidermolysis Bullosa in the search for assistance in the Health Care Network. Method: exploratory-descriptive study, with a qualitative approach, carried out in an outpatient clinic of a Unive...
Niño,
Adolescente,
Epidermólisis Ampollosa,
Cuidadores,
Familia,
Enfermedades Raras,
Salud Infantil,
Salud del Adolescente,
Servicios de Salud,
Servicios de Atención de Salud a Domicilio,
Enfermería
Objective:The objective of this study was to describe the prior knowledge of caregivers of children with special health needs regarding their way of care. Methods:Convergent Care Research was used to produce data through participant observation and interviews before and after the ...
Enfermería Pediátrica,
Personas con Discapacidad,
Cuidadores,
Salud Infantil,
Educación en Salud,
Niño,
Empatía,
Hospitales,
Hospitalización,
Madres,
Necesidades y Demandas de Servicios de Salud,
Padres,
Conocimiento
Objective: to characterize children with special health care needs admitted to a pediatric unit of a teaching hospital in relation to their clinical conditions, care demands and sociodemographic situation. Also, characterize the family caregivers of the children regarding the...
Niño,
Hospitales de Enseñanza,
Personas con Discapacidad,
Cuidadores,
Empatía,
Familia,
Necesidades y Demandas de Servicios de Salud,
Enfermería Pediátrica,
Salud Infantil,
Perfil de Salud,
Hospitalización,
Terapéutica,
Enfermedad Crónica,
Dieta
Pesquisa qualitativa com abordagem participativa que objetivou descrever a rede social de uma criança com necessidades especiais de saúde (CRIANES) no contexto da comunidade. Os sujeitos foram os pais de uma CRIANES sorteada do banco de dados de uma pesquisa. Adotou-se o Método Criativo Sensível (MCS...
